Take your own bed!

Mostly, when people go to stay in a hotel, they don't have to take their own bed. We do!

When you don't have any independent movement, lying all night on a flat bed is 1. Very uncomfortable, 2. Likely to lead to pressure sores.

The solution for us would be a profiling bed (one that changes shape so that shoulders can be raised independently of knees and feet) like we have at home. Anyone who has been into hospital in the last few years will be familiar with profiling beds.

Unfortunately, hotels don't have profiling beds (we have never found one anyway). They are still quite rare in self-catering accommodation, but this is improving, which is great news. You can see our current list of accessible holiday accommodation at the Accessible Property Register.

Our compromise is to take a bed with us! Well, actually it's a folding garden chair with a pressure relieving air mattress is from a hospital trolley. Sounds bizarre, but it works. What's really irritating is that you have to go to these lengths to have anything resembling the choices the non-disabled people have. Inclusive world? Long way to go!